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08/12/2006 06:41:53 PM · #26 |
Ummmm...I had a cold once, and it made me so I had to blow my nose all the time. lol
Nothing to serious with me. |
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08/12/2006 06:45:40 PM · #27 |
I had a speech problem and couldn't talk until I was around 7 years old, then it got a little better. Everything would come out in a stutter and people would give up on talking to me. I had to take speaking lessons for a few years and now you can't even notice.
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08/12/2006 06:51:49 PM · #28 |
Umm... clinical depression and Severe social anxiety maybe.
Although right now I'm suffering a pretty large hernia and separation of the abdominal wall.
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08/12/2006 06:56:54 PM · #29 |
Originally posted by Joey Lawrence:
I had a speech problem and couldn't talk until I was around 7 years old, then it got a little better. Everything would come out in a stutter and people would give up on talking to me. I had to take speaking lessons for a few years and now you can't even notice. |
i had speech problems too. also wrote with both hands. my teachers said i was weird and trained me. my parents don't seem to remember this, but i do.
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08/12/2006 06:57:09 PM · #30 |
Originally posted by Artyste:
Umm... clinical depression and Severe social anxiety maybe.
Although right now I'm suffering a pretty large hernia and separation of the abdominal wall. |
how'd you get the hernia?
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08/12/2006 07:00:41 PM · #31 |
| I think the worst continuous physical pain I ever had was when I cracked my sternum in a car accident. It's hard to hold your breath until a bone heals. |
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08/12/2006 07:02:19 PM · #32 |
While it doesn't seem like a big deal, unless you've had it you can't appreciate the amount of pain gout causes. I've had it in my toe and currently in my ankle. The toe was the worst, even the weight of a bedsheet is excruciating. In some people it lasts only a few days, in others (like me) it can last weeks.
It's not life threatening though and thus it hardly compares to some of other stories in this thread. |
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08/12/2006 07:03:20 PM · #33 |
One morning I woke up with pain in my right leg , after a long treatment for sciatica and no results the only thing left was spinal surgery , the herniated disk was out of the vertebrae , the surgery last more than 3 hours (normally around 1 hour) , again no good results , 6 months later doctors saw a virus from the surgery inside my back (in the X rays it's like a big white spot around 4 inches high) , I spent 2 months in the hospital for that.
The pain was still there and the surgery only made it worse , as consequence of the virus : a bone marrow lesion.
I had to search a solution , another surgery to "put" things right , this time rods and screws to fix all and more things but my english is not too good to explain all, 8 hours of surgery , I woke up screaming , the pain was so high...
Due to all of that , my body has produced very big internal scars and that flesh press nerves,blood vessels etc.It's possible to remove it but
it's not easy and the worse it'll grow again and bigger.
Actually my disability is 65% , I can't work , I can't drive , my life has totally changed ...
The only treatment is morphine (skin patches) , because of the habit-forming , when I forgot to put a new one , it's like becoming crazy. This week one of those patches fall down but I didn't noticed until the following day , I'm a bit better now but it has been very hard.
Another trouble is that I only sleep 2 or 3 hours per day/night.
My strenght is my husband , he is fantastic , patient and always with a
smile on his face , his love is the better medicine.
And I'm so grateful to many of you for their support. Thank you !
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08/12/2006 07:06:15 PM · #34 |
Originally posted by saintaugust:
Originally posted by Artyste:
Umm... clinical depression and Severe social anxiety maybe.
Although right now I'm suffering a pretty large hernia and separation of the abdominal wall. |
how'd you get the hernia? |
It's umbilical. Probably been there since birth.
The separation of the abdominal wall is probably mostly "genetic" as well.. probably been doing it all my life.
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08/12/2006 08:08:20 PM · #35 |
Originally posted by Megatherian:
Originally posted by saintaugust:
...does it affect your ability to work? do you get some kind of disability? |
It absolutely affects my ability to work, drive, stand for very long, concentrate, go shopping, clean, play, do just about anything. All aspecs of my life are severly affected by it.
I'm not on disability right now but I feel like I'm barely holding on. Many people with CFS end up on disability. |
Gosh yeah. I think in a thread a while ago I mentioned to Megatherian that I had chronic fatigue syndrome / fibromyalgia (chronic pain). And oougfh does it ever affect things. Once I actually had an injury to my neck from a desk job. I felt so stupid and pathetic because come on, a desk job?!, but it was because I was straining and overworking my muscles so much, and that isn't a good thing no matter what. My neck popped so badly that a bone in my neck actually moved out of alignment. So anyway, basically what I'm saying is that even a "simple" thing like a desk job can turn into a nightmare at times.
It's hard, disability-wise, because you have to prove you need to be on disability, which means not really being *able* to work, and a lot of times people *must* work just to make (very basic) ends meet. Right now I have a part time job and my unemployment insurance expired so I have to get another part time job but my body can't handle any more hours of work... mmf. But I can't not work either. |
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08/12/2006 08:31:31 PM · #36 |
When I was 24 or 25 I got shingles. They started on my eyelid so I found them quick. My mom is a nurse so I took a picture of it and sent it to her saying it hurt like all hell. The next day I was at the doctor and my parents were making the 6 hour drive to my rescue.
They took me grocery shopping and spoiled me rotten for a day. My mom had to keep remdinding me that I was really sick. I didn't feel sick, but if I was standing for too long I felt like passing out. That and the pain of hundreds of water blisters covering half my skull randomly popping and the sensation of my head crawling constantly.
The funniest thing about this story is that a Jehovahs Witness came to my door while I had them all over one side of my head. He asked "Hi, how's it going?" I replied "I have shingles." He replied "oh, well then... I'll check back with you in a few days." I shut the door and couldn't stop laughing. |
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08/12/2006 08:44:00 PM · #37 |
Among other things: Laurielblack Oh, yeah. I was stubborn enough to last thru 3 of those attacks before it was became an emergency and I missed the SuperBowl; as did the surgeons.
Edit: (Edited out some stuff that I found was beyond my comfort level to post)
Message edited by author 2006-08-12 21:59:49. |
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08/12/2006 08:46:52 PM · #38 |
My excessive use of contact lenses gave me an ulcer in my left eye. I had wondered why sunlight seemed so damn light.. I had a hole right on my pupil. Bright lights burned and made my eyes water. Would have lost my eye within 48 hours if i didn't catch it when i did.
I now wear glasses. |
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08/12/2006 08:55:03 PM · #39 |
| A couple of years ago I was constantly in pain. Every muscle ached, moving was brutal and I couldn't eat because of the stomach cramps. It then evolved into constant leg cramps so bad I didn't really get off the couch for three months. Worked on my back using a laptop. I had gone to the Drs. dozens of times and was told Fibromyalgia, depression, stress, pleurisy, etc. Finally, in November of 2004 I begged my Dr. for more tests. I broke down in his office because my feet were cramping so bad you could see it pulling my toes up through my shoes. three days later, I was told I had Hashimoto's and probably Lupus. We caught the Hashimoto's in time - the thyroid regulates your metabolism. It slows down to the point that it stops. So does everything else in your body. At that point, I was not producing any thyroid hormone. After another visit and more tests, Lupus was confirmed. And I was having an attack because of the stress from the Hashi's. After months of medication, I got back to stable, but not anywhere near where I was. Haven't had a Lupus attack since last fall and my thyroid is regulated so I function well. Just have to stay out of the sun a lot... :) |
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08/12/2006 09:09:15 PM · #40 |
The worst I've experienced is several years of moderate to severe depression. Fortunately mine is mild at the moment - not out of the woods yet, but it's like the difference between tight neck muscles and a throbbing migraine.
There have been some interesting studies about the burden of various illnesses (e.g. Stouthard et al, 1997), which helps set a bit of context on mental illnesses:
- The burden of a mild or moderate panic disorder is comparable to (sacral) spina bifida or being HIV positive.
- The burden of moderate depression is comparable to deafness or multiple sclerosis.
- The burden of severe depression is comparable to disseminated breast cancer and is worse than paraplegia or first-stage AIDS.
- The burden of severe schizophrenia is comparable to quadriplegia or end-stage Parkinson's disease.
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08/12/2006 09:13:28 PM · #41 |
Depression. I'm not going to tell how deep I went, it is scary... Paddles description is pretty close.
Message edited by author 2006-08-12 21:14:16.
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08/12/2006 09:24:32 PM · #42 |
testicular torsion. it's as painful as it sounds. truly a religious experience...
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08/12/2006 09:25:38 PM · #43 |
| With many people posting here having depression, I wonder if it comes out in our work? Might be interesting to find out. |
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08/12/2006 09:30:17 PM · #44 |
Man, you guys have gone through a lot! I hope you all have peace in the future. I've been pretty lucky myself. The worst pain I've ever had was just 5 minutes ago. I heard this ad on cable:
HeadOn.
Head On. Apply directly to the forehead.
Head On. Apply directly to the forehead.
Head On. Apply directly to the forehead.
;) |
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08/12/2006 09:31:44 PM · #45 |
Originally posted by fir3bird:
HeadOn.
Head On. Apply directly to the forehead.
Head On. Apply directly to the forehead.
Head On. Apply directly to the forehead.
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AHHHHHHHH oh no not that ad!!! *runs away* |
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08/12/2006 09:32:48 PM · #46 |
Most painful illness - pnumonia. Felt like an elephant sitting on my chest.
Most painful anything - broken tibia & fibula (both bones in the lower leg). I slipped on wet grass, my foot twisted the wrong way and...SNAP SNAP!!! I don't know what giving birth feels like, but I think this got as close as I ever want to get to that pain.
Message edited by author 2006-08-12 21:33:32.
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08/12/2006 09:36:44 PM · #47 |
Originally posted by dahkota:
A couple of years ago I was constantly in pain. Every muscle ached, moving was brutal and I couldn't eat because of the stomach cramps. It then evolved into constant leg cramps so bad I didn't really get off the couch for three months. Worked on my back using a laptop. I had gone to the Drs. dozens of times and was told Fibromyalgia, depression, stress, pleurisy, etc. Finally, in November of 2004 I begged my Dr. for more tests. I broke down in his office because my feet were cramping so bad you could see it pulling my toes up through my shoes. three days later, I was told I had Hashimoto's and probably Lupus. We caught the Hashimoto's in time - the thyroid regulates your metabolism. It slows down to the point that it stops. So does everything else in your body. At that point, I was not producing any thyroid hormone. After another visit and more tests, Lupus was confirmed. And I was having an attack because of the stress from the Hashi's. After months of medication, I got back to stable, but not anywhere near where I was. Haven't had a Lupus attack since last fall and my thyroid is regulated so I function well. Just have to stay out of the sun a lot... :) |
Hmm. When I was younger I was diagnosed with Hashimoto's and took Synthroid for it. Then my levels became normal, and I stopped taking the thyroid hormone. Now years later, I have been diagnosed with fibromyalgia and am in constant pain. I had a blood test recently to see if it was the thyroid disease still, that had remained untreated. My levels came just slightly out of normal range and the doctor - at my begging and pleading - gave me synthroid to try. So I took it again but I could not sleep normally. I really need to try it again because it would be so great if something could actually help this chronic pain I have, and it has never made any sense to me (or other doctors I have come across) how one can have thyroid disease and then suddenly stop having it. In addition, I have read that with the regular thyroid test that they do, you can be normal for that but still have extremely low energy and other problems associated with thyroid disease. There's another test (I forget the name) that you have to specifically request becuase most doctors (even endocrine specialists) want to think that a normal blood test with what they are used to testing means you do not need treatment, despite your symptoms. |
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08/12/2006 10:01:50 PM · #48 |
Originally posted by aliqui:
When I was 24 or 25 I got shingles. They started on my eyelid so I found them quick. My mom is a nurse so I took a picture of it and sent it to her saying it hurt like all hell. The next day I was at the doctor and my parents were making the 6 hour drive to my rescue.
They took me grocery shopping and spoiled me rotten for a day. My mom had to keep remdinding me that I was really sick. I didn't feel sick, but if I was standing for too long I felt like passing out. That and the pain of hundreds of water blisters covering half my skull randomly popping and the sensation of my head crawling constantly.
The funniest thing about this story is that a Jehovahs Witness came to my door while I had them all over one side of my head. He asked "Hi, how's it going?" I replied "I have shingles." He replied "oh, well then... I'll check back with you in a few days." I shut the door and couldn't stop laughing. |
Hi. No offense here, but I'm trying to figure out what was funny here.
Someone came to your door and you indicated that you had a medical issue that not everyone knows or understands very well, so the person decided to leave and let you rest. They probably knew nothing about shingles (although if you had blisters all over part of your head, we the readers of the forum can only assume that it was visibly apparent), but might have read up on it at home - I know I did when I met someone who had shingles for the first time. Since then, I have only encountered it twice and only as people that my mother knew, overhearing it on the phone. If that was the only exposure I had to shingles, I doubt I would have read up on it and would still be in the dark about it today.
So what's funny?
If I had shingles and the vacuum salesman came to the door I would expect the same behavior.
What else would they say? Did you expect that they would start thumping your blisters with their Bible or something? |
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08/12/2006 10:17:59 PM · #49 |
Originally posted by klstover:
Hmm. When I was younger I was diagnosed with Hashimoto's and took Synthroid for it. Then my levels became normal, and I stopped taking the thyroid hormone. Now years later, I have been diagnosed with fibromyalgia and am in constant pain. I had a blood test recently to see if it was the thyroid disease still, that had remained untreated. My levels came just slightly out of normal range and the doctor - at my begging and pleading - gave me synthroid to try. So I took it again but I could not sleep normally. I really need to try it again because it would be so great if something could actually help this chronic pain I have, and it has never made any sense to me (or other doctors I have come across) how one can have thyroid disease and then suddenly stop having it. In addition, I have read that with the regular thyroid test that they do, you can be normal for that but still have extremely low energy and other problems associated with thyroid disease. There's another test (I forget the name) that you have to specifically request becuase most doctors (even endocrine specialists) want to think that a normal blood test with what they are used to testing means you do not need treatment, despite your symptoms. |
Hashimoto's is an auto-immune disease. Your immune system attacks your thyroid. But sometimes it doesn't. I take synthroid now and every 6 months have to go be rechecked. Or, when my hair starts falling out again (first sign my dosage needs to be upped). :) My dosage has increased every 6 months since I started.
The levels they USED to think were correct are no longer seen as normal. The new levels call for higher thyroid levels. And, they believe now that every person has a different normal. There are three different tests that show three different things: T3, T4, and TSH. TSH is what they usually test but if your body doesn't ask for thyroid (using TSH), your test won't be abnormal. I would go back and have it checked. And checked again. The levels can fluctuate from week to week and your levels are about 2 weeks behind what you are feeling. |
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08/12/2006 10:27:45 PM · #50 |
Originally posted by dahkota:
Hashimoto's is an auto-immune disease. Your immune system attacks your thyroid. But sometimes it doesn't. I take synthroid now and every 6 months have to go be rechecked. Or, when my hair starts falling out again (first sign my dosage needs to be upped). :) My dosage has increased every 6 months since I started.
The levels they USED to think were correct are no longer seen as normal. The new levels call for higher thyroid levels. And, they believe now that every person has a different normal. There are three different tests that show three different things: T3, T4, and TSH. TSH is what they usually test but if your body doesn't ask for thyroid (using TSH), your test won't be abnormal. I would go back and have it checked. And checked again. The levels can fluctuate from week to week and your levels are about 2 weeks behind what you are feeling. |
Yes yes! Some of that I had known before and did not remember enough to put it into words. But I had a better grasp on it before, when I went to the endocrinologist and basically demanded that she not think I was "normal". And some of it I didn't know before so that is cool too. :-)
So thank you SO MUCH for this because I probably really need to follow up on this, and it has been a while and this thread and you have put this in my mind again as a priority.
Message edited by author 2006-08-12 22:30:10. |
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