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08/27/2006 02:34:04 AM · #26 |
Originally posted by klstover:
Originally posted by Megatherian:
I stay up late because it seems that's the time I can finally think clearly. In the morning I have trouble thinking of how to do the simplest tasks. The problem is I get sleepy late at night (there is a big difference between fatigued and sleepy). I almost dread going to bed because I know in the morning my brain won't work for hours. |
I'm sure I have experienced what you mean, but I'd like to make sure I'm on the same page terminologically - could you explain the difference between fatigued and sleepy? |
Think of sleepy as "I've been up for 18 hours and want to go to bed". You may be having trouble keeping your eyes open and your brain starts to "slow down".
Think of fatigued as "I just ran full out for a mile". It's not that you want to go to bed, it's more that you are worn out. It's hard to use your muscles and it may be hard to concentrate. |
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08/27/2006 08:39:11 AM · #27 |
Worse than the lack of sleep , what I consider the hardest part is to try to have pain "under control".
Sometimes it seems more easy to give up and then it's like all the body and all the mind are painful.
Each one knows his/her pain , how the life has changed , it's like a big nightmare but I still have the hope to wake up one day and feel better ; I missed the things I can't do and I try to feel proud of the little ones I'm able to do... |
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08/30/2006 01:24:09 AM · #28 |
Originally posted by cryingdragon:
T3 and T4 are naturally fused. This prevents my rib cage from expanding properly, so I have some breathing issues. I also have degenerative disk disease, so I'm losing a lot of the disks in my back.
My hips don't rotate correctly, which adds to the lower back pain. There used to be a time when I'd wake up paralyzed from the waist down. There is definitely a lot of nerve damage in my legs, but they never could pin it down to anything other than "there's something not quite right" as I have about 50% feeling in my legs. But, that's been like that so long, it's like 100% feeling to me because I don't know any different. |
Ooohf. Sounds icky.
It's so weird how things that are not normal start to seem normal. It's so hard for me to think that I have pain *every single day* but I can't remember what it is like to *not* have it, either. |
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