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02/11/2004 08:56:10 PM · #1 |
About a month ago I had asked everyone here for help with a child who may have ADHD and so many of you offered help and guidence when I was thinking he was misdiagnosed.
I am happy to say he was MISDIAGNOSED! But after arguing with doctors and showing reports from his therapist to any medical professional who would look. I can honestly say my little boy doesn't have ADHD he has Asperger's Syndrome. Which now creates its own little series of what to dos.
Well, the school has little or no experience with Asperger's and I have a little boy who is frustrated at school. Now that I know what we are dealing with it really would be nice if I knew how to handle the frustrations he is experiencing and acting out with at school.
Does anyone have an Asperger's child or a high functioning autistic child? If you do can you tell me if you needed any special classroom help such as an aide or did the child need a special private classroom? We really need some help here with getting the school to meet his needs. But at the same time I can't go to the school and say we need an aide if what he really needs is a private classroom setting. The school has mixed opinions on how to meet his educational needs, and are trying to ignore them.
If anyone has any experience with it or if anyone here has Asperger's I sure would appreciate knowing the educational methods that worked cause the written reports all differ on what to do.
Message edited by author 2004-02-11 21:18:20.
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02/11/2004 09:24:08 PM · #2 |
I have worked with many autistic kids, and there is a real range in terms of behavior, I know less about aspergers, but I believe it is degenerative too, regardless I would try very hard to get your son support, an aide or special class, whatever you can. I can only say that I have 3 special needs kids who flourished in school once they GOT the help the NEEDED. It is exhausting to be an advocate to get them in them into these classes but has been so worth it.
From what I know about autism, routine is important as is, low stimulus, (ie rooms that are not decorated, low noise, no flourescent light, some kids even get over stimulated by certain fabrics touching skin). I am sure there are some assn. that know much more than me, I know their is an autism one near where I live, not sure in your area, hang in there and keep up the good work on behalf of your son! |
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02/12/2004 12:44:47 AM · #3 |
Originally posted by ellamay:
( some kids even get over stimulated by certain fabrics touching skin). |
Oh this I already have been dealing with. He has the preference of silky satiny things touching him. He can't sleep unless he has somthing silk or satin on and do you know hard that is to find for a little boy? Grandma made him several pair of silk boxers, and he has been wearing them now for the last 2 years and we didn't think a lot of it til I started to research aspergers and found out that it is very common the have "comfort" fabrics.
Also happens with food too. Asperger kids are extremely picky eaters and he is the worst kid I ever knew for food.
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02/12/2004 01:03:23 AM · #4 |
Im glad to hear about the misdiagnosis on the ADHD, but sorry to hear about the Asperger's Syndrome
I can find out some info tomorrow evening and PM you.
My girlfriends sister is a teacher and deals with children of special needs. Also 2 of her children have special needs, one is just VERY emotional and some would consider her ADD or ADHD, but she is not, the other has a bit of a learning disibilty.
have you tried looking on WEB MD.
i sent my neighbor there who has chrones syndrom and she found a lot of good stuff there
James
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02/12/2004 01:06:25 AM · #5 |
Before anyone starts questions
What Is Asperger Syndrome?
Lynn - I am not sure that it is degenerative.
Best of our blessings, Anna
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02/12/2004 01:13:15 AM · #6 |
That is a great site. I have been there several times.
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02/12/2004 07:24:05 AM · #7 |
| After many years of hard work on the parents part, my friend Liam jsut got accepted at several prestigious colleges (Tulane, U Miami, U Connecticut). He is a brilliant kid with significant Aspergers and many learning problems. They fought to get him a school placement is a special school for the gifted to address the brilliant side and paid for tutors out of pocket to help him with the learning issues. It has been a terrible struggle, mostly becasue of his difficlulties relating to human beings but he has turned out great. |
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02/12/2004 08:20:35 PM · #8 |
Originally posted by emorgan49:
After many years of hard work on the parents part, my friend Liam jsut got accepted at several prestigious colleges (Tulane, U Miami, U Connecticut). He is a brilliant kid with significant Aspergers and many learning problems. They fought to get him a school placement is a special school for the gifted to address the brilliant side and paid for tutors out of pocket to help him with the learning issues. It has been a terrible struggle, mostly becasue of his difficlulties relating to human beings but he has turned out great. |
Sounds familar already. My little boy is exceptional in Math and Music but struggling in English and Reading. I'm already pushing the school to meet his needs and trying to get him placed in the right classroom setting. I have requested all the proper tests for him and also I put in writing that i want him to have an aide for the next school year.
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02/12/2004 08:27:37 PM · #9 |
Just trying to be consistant.. and moving this to Rant - as it is unrelated to photography.
OneSweetSin: I wish the best for your son! {hug} |
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02/26/2006 12:27:39 AM · #10 |
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02/26/2006 12:46:56 AM · #11 |
Originally posted by KarenB:
Just trying to be consistant.. and moving this to Rant - as it is unrelated to photography.
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This should not be in Rant, this is a subject people must know about, a disorder that was only confirmed in 1994. Statistics (alltough not all conclusive) shows a high population. This information could help a close one an individual may have given up on trying to help them, powerless. |
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02/26/2006 07:04:58 PM · #12 |
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02/26/2006 08:38:48 PM · #13 |
Some more sites that may help those with Asperger Syndrome:
O.A.S.I.S.
Asperger Disorder Home Page
University Students with Autism and Asperger Syndrome
FAAAS, Inc. - Support group for Families of Adults Afflicted with Asperger Syndrome
Asperger's Disorder
Asperger's Connection - online resource and semi-support group
Autism Society of America
Best of luck to you!
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02/27/2006 09:26:53 AM · #14 |
bumping for more awareness!
:)
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02/28/2006 01:40:58 AM · #15 |
My children's godmother's oldest son (now 20) has Aspergers. He wasn't diagnosed until age 15 or so. I can probably get you intouch with her - I know she went through what you are gong through, but add in a teen's hormones and the issues of dating, jobs, fitting in, etc and it was 9and still is) a challenge for her. I beleive she found a support group - my wife would know more but has gone to be. I'll see what I can find out and PM you.
-chris
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02/28/2006 04:40:59 AM · #16 |
I have worked with children with Asperger's syndrome and know a lot of the problems in schools ( in UK anyway). There is no doubt children with this problem need special handling and help is required by schools in any situation. However it is also important that it is realised that the spectrum of Asperger's is also wide - many people live very normal lives but officially could be classed as mildly suffering ( ever met the person who is just slightly weird- just doesn't fit in?). The biggest problem in schools is how these children cope with their peers - frustration can bring with it the tendency to lash out or to become a victim of bullying. An understanding by other children as to why their classmate may act or say something "off the wall" at times helps enormously. Also gradually breaking down of the obsessions and introducing new alternatives is necessary to help the child understand and gain confidence in the world. Drama giving role play situations to allow them to understand how to deal with life and learning stock phrases ( when someone says "How are you?" you answer "fine, thank you. How are you?" rather than actually tell them how you are in greatest detail!)
As an insight into how a child/teenager with aspergers thinks, one of the greatest books I read was
this
It's a novel but compelling and has had great reviews from children with aspergers and their parents.
Any advice I can give to anyone, please PM me.
Pauline
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02/28/2006 05:32:59 PM · #17 |
Feel free to e-mail me. I work with young adults who have Pervasive Developmental Dsabilities and Learning Disabilities. We work very hard to maximize outcomes while engaging students in a positive environment. My son has Aspergers - was not properly diagnosed until adolescence - prior was supposed to be ADHD, though I fought that as not fitting for years. I have seen many who have been labeled as Aspergers who really did not seem to be, and seen many who I thought were but had never been diagnosed. My best advise in a nutshell ==> Remember when it comes to diagnoses and medication KEEP AN OPEN MIND; currently, both are as much art as science. Unfortunately, to a certain extent, that also applies to educating those with Aspergers.
Yet Another Link: //info.med.yale.edu/chldstdy/autism/index.html
N.B. - Aspergers has been known in Europe for years - It only "appeared" on the American scene in DSMV IV
Message edited by author 2006-02-28 18:17:10. |
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03/05/2006 01:33:31 AM · #18 |
| Under Plan 504 - the Citizens With Disabilities Act, all children in public schools have the right to an individual education plan, so be sure and bring this up if he is of school age and is enrolled in a public school system. Best of luck. Half the battle was finding out what the problem was and the other half is now figuring out the best way to work with him for him to reach his potential. |
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